Monthly Archives: January 2015

“Lord Of The Rings” Star Sean Astin Talks About Bipolar Disorder And Calls For Earlier Symptom Recognition

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“Lord Of The Rings” Star Sean Astin Talks About Bipolar Disorder And Calls For Earlier Symptom Recognition

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Actor Sean Astin, best known for his role as Sam Gamgee in the Oscar-winning “Lord of the Rings” film trilogy, is willing to share his personal experience living with a family member diagnosed with bipolar disorder in order to help increase awareness of the symptoms associated with the condition.

Astin witnessed the condition’s trademark highs and lows throughout his childhood when his mother, actress Patty Duke, experienced symptoms of undiagnosed bipolar disorder for years before receiving an accurate diagnosis and effective treatment. Duke’s delayed diagnosis is not uncommon and mirrors the results of a new survey of more than 500 people with bipolar disorder, which shows an average delay of 13 years between symptom onset and diagnosis.

The survey, which was conducted online by Harris Interactive and sponsored by AstraZeneca, included 500 persons medically diagnosed with bipolar disorder.

Lord-Of-The-Rings-Star-Sean-Astin-Talks-About-Bipolar-Disorder-And-Calls-For-Earlier-Symptom-Recognition

“Though my mom was the one who struggled with the symptoms, the…

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Being Bipolar – Dis-Ordered systemic narrative and an opportunity to regain control.

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The National Disability Insurance Scheme in Australia and mental illness.

 

There really seems to be two trains of thought around medication and Bipolar Disorder. Those who think medication is a certainty, an absolute Medication is crucial for managing bipolar disorder”, “Bipolar disorder is probably the main psychiatric disorder where medication is absolutely essential. I’ve had people ask me if there’s any way to do this without medicine. [My answer is] absolutely not.” 1 and the anti-medication and anti-psychiatry movement (and the points in between where the two movements meld). Head along to any anti-medication page on the web and you will read plenty of points as to why they are opposed to medication, with little focus on how to achieve better outcomes on the whole. The anti-medication movement seems set against medical ‘tools’ (in this instance, medication) that can assist in managing fluctuations and outright swings in moods. I found a handful of useful sites that propose ways in which to manage Dis-Order without medication who also were reasonable enough to recommend the use of medication if required to stabilise.

 

The more medicalised and psychology and psychiatry based sites reveal the opposite. Some suggesting that the Dis-Order in Bipolar is unmanageable without medication (see above quotes). As with most topics the two opposing arguments seemed ‘preachy’ and self-righteous and for myself personally, both were as hard to stomach as the other.

 

Unlike many other illnesses, it appears that when it comes to mental health and mental illness everyone has an opinion. Unlike other illnesses there appears to be a perception that the general populous is somehow entitled to have a point-of-view about our lived experience. “You should be on medication”, “psychiatry is a money-making and corrupt industry and you should be off medication”, “have you tried just controlling your moods better?”

Jars

On occasions I purposefully choose not to disclose my lived experience for want of not changing the dynamics of the conversation at hand. I get to hear both the good and the archaic opinions and perceptions in relation to mental illness. Working in an executive role within the field of mental illness/health I get to hear it all and while I recognise there have been great improvements, we still have some way to go. I sat in a meeting recently with some case managers/workers who were discussing a change coming through Australia at the moment – the National Disability Insurance Scheme2 (NDIS). In a nutshell the NDIS has the power to mobilise and enable people (such as myself) who have a mental illness to make their own choices around the services they receive to assist manage their illness. It’s an interesting time as the power balance between services/carers shifts towards the service user themselves. The rolling out of the NDIS seems to have (at least in my experience) heightened the entitlement to ‘have an opinion’ of those of us with a lived experience.

 

The NDIS means that people with a lived experience who have previously been (with all due respect to carers) disempowered to make their own decisions around their care and now being encouraged (at least by the NDIS) to-do so. This is creating a remarkable amount of Dis-Order within the system and the way in which we (again) talk about those with a mental illness. Here we have people who have been ‘unable’ to make their own care decisions for 10, 20 and 30+ years, who under the NDIS are suddenly able to make choices to achieve the best possible outcome for their health. There are murmurs in the mental health sector that service users are ‘struggling’ to make these choices and are thereby missing out on services they are entitled to (services now only get paid when a service user selects them over another service provider, so you can see how this can seem problematic for the service providers, while being great for people with lived experience in the long run). What service providers are forgetting is that a Dis-Ordered system has been created around us, one which disengages us from autonomy and self-control, a system, which has historically silenced our care choices and made decisions for us and on our behalf. Especially for those with more severe and persistent mental health issues, the new liberating and enabling system under the NDIS is a new narrative for many – What? I get a choice in my health care? Yes we do.

 

The NDIS has bought about the polarising opinions of many, of carers, of guardians and of service providers. Again, like with the medication debate, those WITHOUT the lived experience are expressing their point-of-view, speaking on behalf of people with a mental illness, albeit guised as concern for the individual (concern which may be genuine to an extent) and cloaked in a thin veil of caring. I say this because I am privy to these conversations without people knowing of my experience of Bipolar and when I dig a little deeper under people’s concerns for ‘us’, it becomes apparent that there is apprehension about the shift of power from services and carers to the service user themselves. Undoubtedly if a carer or a service provider were to read this, I’m sure to have caused offence and to be criticised as not understand their actual intentions. Fine.

 

The NDIS brings about a remarkable change and with this there is a throw-back to mental illness being something to have an opinion about, rather than a health issue that is best managed by the person with a lived experience themselves (and supported when need be). One of the largest risks I see in relation to mental health and NDIS narrative at the moment is that while the NDIS rolls out and embeds, the voices of those without a lived experience of mental illness will cause such a din that people with mental illness will be hard to hear. Having said this, the core principles of the NDIS are genuine empowerment – the choice and control of our own health care will sit squarely with us. While the NDIS still has some bumps in the road to navigate, it’s potential is revolutionary and where we have been silenced in the past, once we regain our voice and confidence in decision making, the future is resoundingly ours to take.

 

  1. http://psychcentral.com/lib/10-small-steps-you-can-take-today-to-improve-bipolar-disorder/00016916
  2. NDIS http://www.ndis.gov.au/funnelback/search?query=mental%20illness

Bipolar Disorder and the highly sensitive person

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Bipolar Disorder and the highly sensitive person

Bipolar Disorder and the highly sensitive person (lived experience and those that care for us) – the lived experience perspective.

According to J. Raymond DePaulo Jr., M.D. caring for someone with Bipolar Disorder is akin to caring for someone with severe and terminal cancer. There are no other illnesses that compare to the continued effort and exhaustion experienced by carers of people with a lived experience of Bipolar Disorder (BD).

The manic depressive episode experienced by people with BD and those that care for them can (believe it or not) enhance family communication and ‘tightness’. It all comes back to how the sufferer and the carer manage. A person with a lived experience of BD can in actual fact enhance your life. Our perspective and our insight can enrich the daily grind. When managed well, a person with BD can change the way you see things. Thinking outside the square and the necessary need to develop insight and awareness can actually benefit those around the person with the BD lived experience. It’s how we survive. Often seen as ‘highly sensitive people’, intuitive and responsive, it is true that we can live our life in a state of high alert (elation), with intermittent periods of downtime (depression).

Expressing our lived experience to those either “around us” or those who care for us can be a difficult experience. To be able to demonstrate that our experience is an illness and not a weakness, can be the most difficult thing of all. Our sensitivity or acute awareness may manifest as a panicked episode or a heightened sense of our environment, resulting in an inability to manage information which for other people, may be easily processed (think trauma, animal cruelty and exposure to disturbing communication/s). For myself personally, I have had a number of events occur in my life where I am extremely sensitive to ‘energy’ around me. (Bare with me, this is left of centre…of course). I once was driving with my son into the valley where I live. It was late at night and I had a ‘sense’ that there was a meteorite about to strike the earth. My son was asleep as I began to panic. Then from his hazy slumber he said the word “meteorite”. It was enough to stop me in my tracks. I had to call my husband for him to come and collect us. Within my heightened state of awareness, I had an overwhelming sense of harm to people on earth. I think it was early 2013, maybe February? That night a meteorite struck the earth injuring over a thousand people in Russia. How do I know? Every time I get this type of sense, my husband watches the media for reports that what I felt to confirm whether my senses were valid. More often that not, it is. We use this as a tool to manage my wellness, since too many ‘misses’ means I may be heading into dangerous territory (psychosis, paranoia et al).

This is what makes my husband my greatest carer. He doesn’t disregard my experience. While I recognise that this is not what it is like for all people with BD, I have come across too many other ‘sufferers’ that have had similar experiences to disregard my own as coincidence. Fortunately my husband doesn’t look for coincidences either, he looks for the ways in which my senses align themselves with reality.

I can imagine (if I were a carer) that it would be much easier to look for more plausible explanations, or to disregard and not pay much attention. I truly see that this would be a reasonable response…after all we are “insane”.

The highly sensitive person (HSP) has been well documented. The person as highly sensitive and with BD is yet to be fully explored, although there are plenty of lived experience blogs which address this, yet for many the correlation can be disregarded. Part of the HSP/BD complex is that, where in Western culture success is measured by how busy you are, how much you earn and how well liked you are, all of which can be triggering for a person with lived experience. Unless I’m in a state of mild to moderate the mania, I’ll be frank, you would probably find me bothersome and with a history of holding down a job for no more than 2 years (mostly due to boredom and sometimes paranoia) it is difficult to achieve the stability required to be considered a success. In fact, what many people without BD seek to achieve in life, I find a stressor, triggering episodes of either depression or mania.

The experience of being a person with a lived experience of BD and thus a HSP means that during times of mild to moderate mania, I can be flooded with inspiration, creativity and a wealth of ingenious ideas. Now of course not all of these ideas can be harnessed, yet those that can may lead to the start of something great. For myself, these ideas often stop in their tracks due to the pattern of my experience. Mania; influx of ideas, the sense that things move too slowly and then the abandonment of the ideas due to restlessness, irritability and agitation, often resulting in a depressive episode.

I envy the HSP who tends not to fluctuate between mania and depression, since my fluctuations can indeed be life threatening, this is (to me) what distinguishes the HSP from the HSP/BD person. It’s not so much my down turn into depression that is the most risky moment for me, it is the stability that follows, the not knowing when the next up and down will be that really has me come undone. It is the thought of the depression that fills me with fear, not the actual depression itself (as strange as that may sound).

I have openly described myself as a HSP, well before I was ready to disclose my lived experience of bipolar. It seemed (and still does) that it is much more acceptable to be a sensitive type than to be a mood disoriented/fluxing person. After all, we all feel sensitive at some point, yet not all sensitive people loose their sense of self in the ride between the two opposing points; mania and depression. The highly sensitive facet of my illness is (to me) a gift, the rest (the disassociate highs and the unbearable lows) is a burden I feel I must bare, a circumstance of the sensitive self.

My husband has reflected to me that I appear to have a great capacity for empathy, for spirituality and a thirst to seek greater meaning in life. He and I also recognise that this quest for meaning can be interrupted by my illness, I take two steps forward into awareness and one-step back…this is guaranteed.

At one stage I could barely put one foot forward, so the effort of taking two steps resulting in one, is a good outcome all things considered. Through my BD lived experience I have come to recognise the value of meditation, of following a spiritual path, of getting out in nature and I am learning to master the art of distraction. Through distracting myself from my sensitive thought patterns (fear, gloom, paranoia, elation) I am able to begin to break the BP cycle. It isn’t perfect, but it is an improvement.